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Links and Resources

Click one of the links below to jump directly to that topic on this page.

·         What is Sarcoma? General Information & Resources

·         Angiogenesis

·         Biographies/Survivorship Issues

·         Cancer Advocacy

·         Cancer Clinical Trial Information

·         Chemotherapy

·         Complementary/Alternative Medicine

·         Desmoplastic small round cell tumors (DSRCT)

·         Drug Info

·         Drug Research Updates

·         Ewings Sarcoma

·         Financial Assistance: Basic Living Expenses

·         Financial Assistance: Government Assistance

·         Financial Assistance: Prescription Expenses

·         Financial Assistance: Transportation and Travel Resources

·         General Cancer Information & Resource Sites

·         General Medical Online Research Sources

·         Housing Assistance - Houston, Texas

·         Interpreting Pathology Reports

·         Online Sarcoma Support Groups

·         Rare Cancers

·         Research

·         Sarcoma Centers

·         Soft Tissue Sarcoma

·         Young Adults

 

 

What is Sarcoma? General Information & Resources

Amschwand Sarcoma Cancer Foundation

www.sarcomacancer.org/index.php?page=research

           

ASCO Sarcoma Cancer Portal - Articles and Abstracts

sarcomaca.asco.org/

           

Association of Cancer Online Resources -- Cancer List

www.acor.org/types.html

           

Beatsarcoma.org - Links to articles for newly diagnosed sarcoma patients

stories.beatsarcoma.org/2011/10/must-read-articles.html 

           

Dana-Farber Cancer Institute - Dr. George Demitri

www.dana-farber.org/Health-Library/What-is-sarcoma-and-how-is-it-treated-.aspx

           

Dr. Stephen Fadem's Sarcoma Page

www.nephron.com/sarcoma.html

           

Liddy Shriver Sarcoma Initiative

www.sarcomahelp.org/

           

National Cancer Institute - A Snapshot of Sarcoma

http://www.cancer.gov/researchandfunding/snapshots/sarcoma 

           

Sarcoma Alliance

www.sarcomaalliance.org/

           

Sarcoma Alliance for Research through Collaboration (SARC) Information on Sarcoma Clinical Trials

www.sarctrials.org

           

Texas Children's Cancer Center

www.txccc.org/

 

Washington Cancer Institute

www.sarcoma.org/

           

Angiogenesis   

 

Angiogenesis Information

money.cnn.com/magazines/fortune/fortune_archive/2000/05/29/280604/index.htm

           

The Angiogenesis Foundation

www.angio.org/

           

Biographies/Survivorship Issues           

 

CancerForward: The Foundation for Cancer Survivors

www.cancerforward.org/

           

Sarcoma Alliance

www.sarcomaalliance.org/Stories/stories.html

           

The Silver Pen – Hollye Jacobs, a Pediatric and Adult Palliative Care Nurse, a Social Worker, and breast cancer survivor shares her real life stories through her blog

www.thesilverpen.com

 

Beat Sarcoma

www.beatsarcoma.org/index.php 

           

Cancer Advocacy         

 

American Cancer Society Cancer Action Network Inc.

www.acscan.org

           

National Coalition for Cancer Survivorship

www.canceradvocacy.org/

           

Patient Advocate Foundation

www.patientadvocate.org 

          

Stand Up To Cancer

www.standup2cancer.org/

           

Cancer Clinical Trial Information 

 

CenterWatch Clinical Trials Listing Service

www.centerwatch.com/

           

Coalition of National Cancer Cooperative Groups

www.cancertrialshelp.org

           

EDICT - Eliminating Disparities in Clinical Trials, Baylor College of Medicine

www.bcm.edu/EDICT

           

National Cancer Institute Clinical Trial Information

www.cancer.gov/CLINICALTRIALS

           

Sarcoma Alliance for Research through Collaboration (SARC) -- Information on Sarcoma Clinical Trials

www.sarctrials.org

           

Chemotherapy  

 

The Chemotherapy Foundation

www.chemotherapyfoundation.org

           

Complementary/Alternative Medicine     

 

MD Anderson Complementary/Integrative Medicine Education Resources (CIMER)

www.mdanderson.org/departments/CIMER/

           

National Center for Complimentary and Alternative Medicine (NCCAM)

www.nccam.nih.gov/ 

           

National Institutes of Health: Office of Cancer Complementary and Alternative Medicine

www.cancer.gov/cam

           

The Cancer Project

www.cancerproject.org

 

Desmoplastic small round cell tumors (DSRCT)

 

 CHRISTUS Stehlin Foundation for Cancer Research

 http://stehlin.org/dsrct/

 

           

Drug Info         

 

Rx List - The Internet Drug Index

www.rxlist.com/

           

Rx.com

www.rx.com/

           

Drug Research Updates

 

FDA Cancer Liaison Program

www.fda.gov/ForConsumers/ByAudience/ForPatientAdvocates/CancerLiaisonProgram/default.htm 

           

Marti Nelson Cancer Foundation

www.canceractionnow.org

           

Ewings Sarcoma          

 

Cure Our Children

www.cureourchildren.org

           

Financial Assistance: Basic Living Expenses

 

Children's Cancer Recovery Foundation (800) 2386479

www.childrenscancerrecovery.org

 

Life Beyond Cancer Foundation (800) 282-LBCF

www.lifebeyondcancer.org

           

Financial Assistance: Government Assistance    

 

Medicaid (877) 267-2323

www.cms.gov/medicaid/consumer.asp

           

Social Security Administration - Disability Benefits (800) 772-1213

www.ssa.gov 

           

State Children's Health Insurance Program (877) KIDSNOW

www.insurekidsnow.gov

           

Financial Assistance: Prescription Expenses     

 

American Cancer Society (Local Chapters) (800) ACS-2345

www.cancer.org

           

Cancer Care (800) 813-HOPE

www.cancercare.org

          

Partnership for Prescription Assistance (888) 4PPANOW

www.pparx.org

           

RxAssist

www.rxassist.org

           

Financial Assistance: Transportation and Travel Resources         

 

Air Care Alliance (888) 260-9707

www.aircareall.org

           

Air Charity Network (877) 621-7177

www.aircharitynetwork.org

           

Corporate Angel Network (866) 328-1313

www.corpangelnetwork.org

           

Needy Meds - Links to Assistance Programs

www.needymeds.org

           

Sarcoma Alliance (415) 381-7236

www.sarcomaalliance.org

           

General Cancer Information & Resource Sites    

 

Association of Cancer Online Resources, Inc. (ACOR)

www.acor.org

           

American Cancer Society

www.cancer.org/

           

American Society of Clinical Oncology

www.asco.org/ 

           

Cancer and Careers

www.cancerandcareers.org

          

Cancer Index

www.cancerindex.org

           

Cancer Information & Support Networks

www.texascancer.info/

           

CancerNet: PDQ - NCI's Comprehensive Cancer Database

www.cancer.gov/cancertopics/pdq/cancerdatabase

           

Cancer Source - Information for Patients, Doctors, & Nurses

www.yourcancersource.com/

           

Caring Bridge - A Nonprofit Connecting Family and Friends When Health Matters Most

www.caringbridge.org

          

Kids Need Information Too (KNIT) - Information for children whose loved ones are affected by cancer

http://www.mdanderson.org/patient-and-cancer-information/guide-to-md-anderson/patient-and-family-support/child-life-journal.pdf

           

Medscape Oncology Home Page

www.medscape.com/hematology-oncology

           

National Cancer Institute

www.cancer.gov/

          

National Comprehensive Cancer Network

www.nccn.org/

         

Oncolink - Cancer Info for Professionals and Lay Persons

www.oncolink.upenn.edu/

         

Patient Resource Cancer Guide

www.patientresource.net

           

Steve Dunn's Cancer Guide

www.cancerguide.org/

           

Texas Children's Cancer Center

www.texaschildrenshospital.org/carecenters/cancer/

 

The Silver Pen – Hollye Jacobs, a Pediatric and Adult Palliative Care Nurse, a Social Worker, and breast cancer survivor shares her real life stories through her blog

http://www.thesilverpen.com/

           

General Medical Online Research Sources         

 

National Library of Medicine - Access to Medline and Life Science Journal Articles - Free Searches of US National Library of Medicine (NLM Gateway) 

www.ncbi.nlm.nih.gov/entrez/query.fcgi

           

Research - Anything!

www.refdesk.com

           

US Department of Health and Human Services - Healthfinder

www.healthfinder.gov

           

Virtual Hospital

www.vh.org/

           

Housing Assistance - Houston, Texas

 

Amschwand Sarcoma Cancer Foundation's Corporate Housing Program:

ASCF's Corporate Housing Program lessens both the financial and emotional toll for out of town sarcoma patients seeking treatment, follow-up and care from Houston specialists by offering free housing in the Medical Center.

www.sarcomacancer.org/index.php?page=corporate-apartments

 

Housing Assistance

 

American Cancer Society (Hope Lodges) (800) ACS-2345

www.cancer.org

           

American Childhood Cancer Foundation (800) 366-2223

www.acco.org/

           

Fisher House (888) 294-8560

www.fisherhouse.org

           

Hospitality Homes (888) 595-4678

www.hosp.org 

           

National Children's Cancer Society (314) 241-1600

www.nationalchildrenscancersociety.com

           

Ronald McDonald House Charities (630) 623-7048

www.rmhc.com

           

Interpreting Pathology Reports  

 

Amschwand Sarcoma Cancer Foundation - Adjunctive Treatment

www.sarcomacancer.org/adjunctive-treatment

           

The Doctors Doctor - Interpret Pathology Reports

www.thedoctorsdoctor.com/

 

Online Sarcoma Support Groups           

 

ACOR Mailing Lists - Cancer Support Groups and Info

www.acor.org

           

Chondrosarcoma Support Group

www.chondrosarcoma-support.org

           

Endometrial Stromal Sarcoma Support Group

health.groups.yahoo.com/group/Endometrialstromalsarcoma/?v=1&t=search&ch=web&pub=groups&sec=group&slk=3Sarcoma

           

Epethelioid Sarcoma Support Group

health.groups.yahoo.com/group/Epithelioid_Sarcoma/?v=1&t=search&ch=web&pub=groups&sec=group&slk=15

           

Ewings Sarcoma Support Group

health.groups.yahoo.com/group/ewingssarcoma/?v=1&t=search&ch=web&pub=groups&sec=group&slk=49

           

Rare Cancers

 

Alliance Against Alveolar Soft Part Sarcoma

www.alveolarspsarcoma.net

          

National Organization for Rare Disorders

www.rarediseases.org

           

Rare Cancer Alliance

www.rarecancer.org

           

Research

 

American Association for Cancer Research

www.aacr.org

          

American Insititute for Cancer Research

www.aicr.org

          

Cancer Research Prevention Foundation

www.preventcancer.org

         

Cancer Research Institute

www.cancerresearch.org

           

Sarcoma Centers          

 

 

Dana Farber Cancer Institute
http://www.dana-farber.org/
Boston, Massachusetts

(617) 632-3000

Fox Chase Cancer Center
http://www.fccc.edu
Philadelphia, Pennsylvania

(888) 369-2427

H. Lee Moffitt Cancer Center
http://www.moffitt.org/
Tampa, Florida

(888) 860-2778

Huntsman Cancer Institute
http://www.huntsmancancer.org/
Salt Lake City, Utah

(801) 585-0303

James Cancer Hospital and Solove Research Institute at The Ohio State University
http://www.jamesline.com/
Columbus, Ohio

(614) 293-5066

M.D. Anderson Cancer Center
http://www.mdanderson.org/Care_Centers/Sarcoma
Houston, Texas 

(713) 792-6161

Memorial Sloan-Kettering Cancer Center
http://www.mskcc.org/
New York, New York

(800) 525-2225

Roswell Park Cancer Institute
http://www.roswellpark.org/
Buffalo, New York

(716) 845-3516

Seattle Cancer CareAlliance
http://www.seattlecca.org/patientsandfamilies/adultcare/clinicalProgs/sarcoma/  
Seattle, Washington

(206) 288-1024

University of Michigan Comprehensive Cancer Center
http://www.cancer.med.umich.edu/
Ann Arbor, Michigan
(800) 865-1125
  

Soft Tissue Sarcoma     

AMM Eggermont MD, Daniel Den Hoed & Soft Tissue Sarcoma People Org.

www.stsp.org/

           

U of Pennsylvania OncoLink Sarcoma Page

www.oncolink.org/types/types.cfm?c=17

           

World Health Organization Histological Classification of Soft Tissue Tumours

www.springer.com/medicine/pathology/book/978-3-540-56794-3

           

Young Adults 

 

Camp Kesem

www.campkesem.org

 

I'm Too Young For This

www.imtooyoungforthis.org

           

Planet Cancer

www.planetcancer.org

           

Young Survival Coalition

www.youngsurvival.org

 


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